Parents in Wheelchairs

Being realistic about my limitations.......

February 10, 2012
I'd like to think that there is nothing I cannot do for my daughter and for the most part that is true....there is very rarely (to the point where I can't think of an example) a time when I have had to ask someone to take the reins because of me being unable to do something for Sarah.
I have always been aware that the weather can emphasise my limitations - if it's really wet outdoors, controlling the speed of my chair on anything but a flat surface is tricky. To slow down my wheelchair I must grip the push rims and when both they and my hands are wet, this tends to be a bit 'hit and miss'....something akin to the good old 'kangaroo petrol' we all experienced when we were learning to drive!
Anyway, I digress........the long anticipated snow arrived last weekend and it never crossed my mind that there was even a question over whether I would take Sarah to her friend's birthday party or whether I would ask James to step in...he did, of course, offer but I said we would be fine...and we were....but I was keenly aware that if we did get in to trouble (getting stuck in the snow or skidding into another car etc) I would not be able to get out of the car very easily or be able to take care of Sarah's needs at the level I would ideally strive for. I would not be able to scoop her up in my arms and take her to safety.........all of this made me feel that we were vulnerable....more vulnerable than other people.
We did skid and slide about a bit and my heart rate increased beyond my comfort zone a few times...but we got there and back safely and I was relieved when we got back on to the front drive that evening. The snow didn't last long and my episode of feeling vulnerable was short-lived...
However, last night we had 'freezing rain' and a sprinkling of snow. The weather news reported severe road conditions and I was glad that I had not travelled to Preston for work (220 mile round trip) but had worked from home instead. Sarah goes to a pre-school nearby on a Friday morning and I normally escort her up there and collect her at lunchtime. It is within pushing distance so we go 'on foot'. However, one of the first things I thought of this morning was the weather - what were the pavements like? You see, it is one thing for me to slide about a bit but I cannot hold Sarah's hand while I am pushing and therefore I would not be able to assist her to stay upright if she slipped. James offered to take her up to pre-school and part of me really wanted to say 'No, no, we'll be fine thanks' but I had to step back and accept his offer because it wasn't about me being able to make it up there and back...it was about me being able to ensure Sarah's safety. I accepted James' offer and watched them toddle off up the road hand in hand.......I would be lying if I said that no part of me wished that that could have been me and Sarah - we may not be able to walk along holding hands but there are plenty of other special little things that we can do that make up for that.
I made a cup of tea and pottered about and then James came home - he confirmed that we had made the right decision as the pavements are laden with ice and there were several times that Sarah slipped and she would have fallen if James had not got hold of her hand.
This has really shown me that that are times when it's not about how I feel about me potentially missing out on things because of my disability but more about how it impacts on others and trying to make the right decisions......we made a good call this morning...thank you James for stepping in xx

 

Sweet Sixteen.....

January 30, 2012

It was a rare occasion this morning that I took Sarah to pre-school as James has a day off work. (Normally, he takes her in the morning and I collect her in the evening). I went in to take Sarah a cup of tea and she said "What are you doing Mummy?" I said I'd brought her a cup of tea and she clambered out of bed and on to my lap....."I'm having a game Mummy...that I lost my home and someone had to help me find it".......I asked her how her toe was (as she stubbed it yesterday) and, after a coming up for air from her cup of tea, she replied "F for Fine!" with a grin on her face. "Oh, that's good" I said and she said "D for dog, D for Diamond, D for Daddy!" (I could tell that she had been awake for some time!!).
"Are YOU taking me to pre-school today Mummy?" "Yes, darling, is that OK?" "But you can't Mummy because there is a step...there are two steps Mummy" (she has her breakfast in a different room to the pre-school room that I collect her from in the evenings, but you can get to it two different ways, one of which has level access). "It's OK honey, there is another way".
How sweet that she should even consider that, never mind at that time in the morning!
We got her dressed and ready to go and on the journey, out of the blue she said very earnestly "Mummy? I think I have stopped talking about willies now" "Oh, have you, what on earth made you think of that?" "I don't know, I just think I have stopped now Mummy".
This is pricelees! She has, of course, gone through the whole 'You've got boobies and Daddy's got a willy' thing and I did mention to James the other day that she had mentioned willies quite a few times of late but we haven't made a big deal of it to Sarah so this 'development' came as a surprise!
When we arrived at pre-school and I parked in a different car park to where James normally parks, Sarah said "Oh, I remember this way, you're right Mummy, there is no step!" and sure enough, I was able to drop her off fine.

It's 16 years ago today that I had my accident and I have all that I could ever hope for. You are the icing on the cake Sarah and I feel very lucky and privileged to be your Mummy xx
 

Sarah's sense of humour...

November 20, 2011
It has been a long while since I wrote last and Sarah continues to amaze us each and every day. She has already developed a cracking sense of humour and is a great sport! She is full of beans and just loves life - 'where are we going today Mummy?' is a frequent question when she gets up in the morning. She skips around with her bouncy wavy hair, notices her reflection in the glass oven door and pulls a funny face, puts both legs in one leg of her pyjamas and says she's a mermaid, reads us bedtime stories holding the book so we can see the pictures (like her teachers at pre-school do)....and the list goes on. She brightens up a room and she is the icing on our cake. We love you Sarah xx
 

Time is flying by...........

February 28, 2011
Gosh, it's March tomorrow and I can't believe where the time is going.....Sarah is now 3 years old and still is still the lovliest little person in the world. I know that all parents say that but she really IS!!!!
Sarah really got into Christmas this year and tried to understand the concepts of the Christmas tree/Father Christmas coming down the chimney/advent etc etc. I don't think it will be long before she works out that it would be impossible for Father Christmas to come down the chimney...she considers things too much and isn't afraid to question us if she doesn't understand. She loved opening her presents and shrieked with joy when she unwrapped her Snow White dress! On it went over the top of her PJ's!! Another great hit was a princess castle (doll-house style) and a set of miniature princesses to go with it.
She really got into the idea of receiving gifts but was, as usual, great when they stopped coming.....makes me wonder how much she understood it all and I really want to believe that we explained it well!
She wasn't impressed when we took all the decorations down but was OK as "We will have Christmas again and have a christmas tree and Santa will bring more presents"!!

Sarah continues to be full of life and like a sponge absorbing all there is to learn. Very rarely do we have to explain things twice and her memory is outstanding. She has recently started going to ballet classes and thoroughly enjoys pretending to be a fairy flying around looking for butterflies and I treasure every moment watching her!!

You are truly flourishing Sarah and we are thoroughly enjoying watching you xx

 

Freezie!

November 15, 2010
When looking out at the frost this morning Sarah announced; "It's freezie outside Mummy!"

 

Being Mummy to Sarah just gets better and better........

September 23, 2010
Oh my word! Sarah seems to be learning and developing on a daily basis at the moment....(now aged 2 years, 8 months) ....I took her to the playground last weekend and she headed off towards the gate, opened it, held out her arm and said "After you Mummy" How cute is that?
When I arrived to pick her up from Grandma and Grandad's today, she rushed over to the car and , whilst bouncing around excitedly, told me that she had made a picture for me, and "It is a present for you. I will put it on my wall. You will be happy Mummy!".
We sat together on the sofa and watched her favourite TV programme tonight......we each had a chocolate as a treat and straight away she said "Oh, thank you Mummy!"
Her counting is utterly brilliant - she lined up the conkers she got from the garden earlier, touched each one and counted them perfectly - up to 12!
We went to wave at Daddy through the window earlier and when we were moving away from the window she asked "What are these Mummy?" "They're blinds" "Are they?" "Yes, they're not curtains are they?" "No"....and so on - we can really have a proper conversation now and her vocabulary is fantastic.

These are all just the tip of the iceberg and everyday she says or does something that touches me in a way I have never experienced before - I just feel so blessed to have such a healthy, bright, loving and beautiful daughter - she really does light up the room.

I never knew I was in to fairies and princesses and Mickey Mouse and Tinkerbell and the little waving cat figurine that sits in the window of the Chinese herbal shop near the traffic lights until a few months ago - it's funny how you get sucked in to their world isn't it? It's ACE!
 

Taking Sarah to London on the train for the first time..........

August 27, 2010

Today I had a fab day with my daughter - I took her to London on the train on my own...........may not sound unusual to most mums but I use a wheelchair and it was not that long ago that I went to London on the train on my own for the first time since my accident 14 years ago. It requires relying on assistance to get on and off the train (which sometimes does not go to plan). Taking Sarah with me requires me to take her safety into consideration too and to believe that she will not wander off down the carriage beyond my reach etc.

I am pleased to say that it was a great day! Sarah was, as usual, an absolute star and we went on the train, a bus and in a taxi. Sarah (aged 2.5yrs) had to get off all of these on her own and wait for me to be helped and she waited exactly where she was asked to. We met up with my sister and her little boy and spent a considerable amount of time walking in and around London and she never strayed off or behaved in a way that endangered her safety.

To finish a perfect day, we were invited to travel 1st Class on the way home and were treated to drinks and a meal courtesy of Virgin Trains!

Thanks Sarah for letting me trust you and demonstrating that you can, indeed, be trusted at such a young age. I'm proud of you x

 

Joining the gym..........

August 24, 2010

I am 37 years old and at an induction session at a local gym last night I was asked "Have you ever been to a gym before?" I'm sure they expect most people of my age to answer "Yes" but to my horror, I answered "NO".

Before my accident (now with a spinal cord injury T12 complete) I used to go to fitness classes but never the gym. Since being in a wheelchair I have dabbled with wheelchair tennis and swimming and was a member of a wheelchair basketball club for a few years.

I think that the main reasons for my evasion of gyms have been 1) being very self conscious - especially about transferring on and off the equipment and 2) preferring the social aspect of a team sport/activity.

However, now I am a Mum (hurrah!) my loyalties lie closer to home rather than travelling unrealistic distances to basketball training and matches. Also, my office-based work means that I do not rush around all day expending energy.

So, it is time to do something constructive that I can fit in around my family and work commitments.........my increasing waist line is demanding that I either do this or buy clothes in the next size up!! I have tried pushing round the block but negotiating the cambers of the pavements, dropped curbs, inclines, declines etc make it all unpredictable and therefore difficult to set a steady pace.

I have discovered that my local council-run gym is just the ticket – they have about 5 pieces of equipment that can be used by wheelchairs users as well as able-bodied people. The locking mechanism for the seat/bench can easily be released allowing the seat/bench to be rotated to the side. This enables wheelchair access to the equipment. There are even two hand-cycles that have seats that can be removed to allow wheelchair access.

I tried all of the 5 pieces of equipment last night and went back this afternoon and hand-cycled for 10km. I am so pleased that I have found an environment where I can work out properly whilst remaining in my wheelchair.

I would urge anyone who is thinking about going to the gym but keeps putting it off to look in to facilities available in their local area. I was pleasantly surprised and you may be too!
 

Walking with Sarah without reins.......

August 24, 2010

I was asked recently whether I Sarah wears reins when we go out together………. As Sarah become more and more mobile I was concerned about how I would keep her safe when we were out and about once she was walking. A friend bought some reins for me to use and Sarah detested them.....so they were only used once. During a trip to park one day, James and the boys went off ahead and Sarah and I spent some time walking alone. I talked to her and asked her to walk 'next to Mummy'. When she slowed down I did too and when she walked ahead I stopped and asked her to come back to me. I try to ask her to do things rather than asking her not to do things. E.g. "Please walk" rather than "don't run" and she seems to respond really well to this. This 'training' (for want of a better word) has paid off big time because she has never run off. Even crossing the road; I can't hold her hand so I tell her to stand next to me and wait. Then when we are about to cross, I point to and describe exactly where we are going and say that we are going to walk etc. As a result, we cross safely and not in a hap-hazard way. Having said all of this, I will not let my guard down and become complacent...she is only 2 and a half years old and I talk her through everything every time.

I am surprised that I do not need to use reins, but pleasantly surprised! Of course, when we are in the park now, I am happy for her to run ahead or lag behind within reason as it’s a time for play and discovery. However, safety is the priority when walking on the pavement or crossing the road.

One thing that really bugs me is when I see parents and children walking along the pavement and the children are walking closest to the road………..

 

Have you got a baby in your tummy Mummy?...........

August 2, 2010


One of my friends had baby recently "Baby Freya" as sarah calls her. After visiting her for the first time, Sarah was getting ready for bed as usual, singing to herself in her own little world "I'm a little girl called Freya, Freya, Freya. I'm a little girl!". About a month later, we went out for a family picnic and Sarah's Aunty Tor, who was heavily pregnant at the time, was there so we had the discussion of the baby in Tor's tummy and that it would be coming out in a few weeks. 
A couple of days after that, Sarah and I were playing on the bed and she stroked my tummy....."Have you got a baby in your tummy Mummy?" "No darling, Mummy hasn't got a baby in her tummy." "Oh!" she said "You just got a big tummy Mummy?"
Very funny and probably one of the few people who can get away with a comment like that!!!!!
 

About Me


Ali Gibson Working Mum/Wife, 39, GSOH, OHAC!!!! Spinal Injury - T12 Complete